Other long term effects of PCOS

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Postby Tubman » Sat Aug 22, 2009 3:53 pm

Dear All-

I am new top this group, and could really do with some great advice.

I began my periods when I was 12, and never had a cycle (incredibly irregular). At 19 I visited my GP, who placed me on the combined contraceptive pill. Everything was hunky-dory, until around March this year, when I began to experience inter-menstrual bleeding. I had an internal ultrasound, and my ovaries were found to be polycystic. This combined with a history of irregual "natural" periods meant I was provisionally diagnosed with PCOS and put on a pill with a higher Eostrogen content (Celeste).

Celests proved to royally ruin my life, with the bleeding becoming heavier and constant. I at one point had to visit my A and E department, who later sent a letter to my GP suggesting I be sent for Hormone tests. Meanwhile, I was changed to a different pill (Marvelon) which has returned everything to its previous hunky-dory status.

Not expecting to hear anything unusual regarding my bloodwork (I don't understand the point of testing someones eostrogen levels when they're taking it synthetically) I was suprised to be referred to an Endocrinologist by my GP. She sent me a copy of her letter, which explains my blood showed "very low fsh and lh, and low testosterone", and suggests I may have a hypopituitary disorder.

I was wondering if anyone had a similar experience diagnoses wise, and if they went to the endocrinologist, how helpful was it? I don't suffer from any of the rougher PCOS symptoms, such as acne, weight gain or excessive hair, and considered myself to have been lucky to have got off lightly prior to this hypopituritarism business.

Has anyone else had their pituitary investigated? And is there a link with PCOS? I have had relavtively little contact with my GP, so have been unable to ask many questions thus far. Any help and sharing would really put me at ease.

Best Wishes to you all,

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Joined: Sat Aug 22, 2009 3:37 pm

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