It all seems so bleak....

General discussion area. Just been diagnosed? Need to share your story and get some peer support?

Moderators: Northfifer, Sammi, Hols969, DawnyB, purplestar, loachy, Mrs Wilko, Lutzomyia, thebuzz

It all seems so bleak....

Postby Naz » Tue Jul 12, 2005 11:30 am

Hi,

I have just realised that after living with PCOS for most of my life and ignoring it, I now need to do something about it.

I have been looking at other websites and it all seems so bleak. I just feel so depressed now and I was depressed to start of with.

I was diagnosed in my late teens when I still lived in South Africa. I had a fabulous (I now recognise) gynacologist who took the pain and the thinking out of it for me. The symptoms were controlled and managed and I just didn't think about it. I moved to the UK, the symptoms re-appeared and I went to my GP after about 2 years. In the meantime my weight had crept up even tho I was dieting and exercising very regularly.

MY GP confirmed diagnosis about a year ago and put me on the pill. This is obviously not working cos the symptoms are getting worse. Lots and lots of weight gain, lots of hair (YUK!) moody, depressed, lethargic, irregular periods and I am on the pill. Things are getting worse, not better and I have no idea what to do and the other websites have madde me more confused.

So I have made an appointment with my GP - and I am hoping that this time she will give me information and help me instead of telling me to read up on it on the internet!!

I feel angry, confused. depressed, and like there is no way out. Please can anyone give me some idea of what I should be asking my GP to do to help me?

Many thanks

Naz
Naz
 

GPs and knowledge

Postby Platinum » Tue Jul 12, 2005 12:37 pm

Poor you! It can get very confusing at times - so many symptoms, so many treatments. It sounds as though you had a great Doc in SA.

But I wouldn't despair of your current GP - I actually think that suggesting that the patient reads up on their condition is quite forward-thinking of her. She is a General Practitioner, and PCOS is a complex condition. So many of us are given ‘answers’ by GPs whose experience of the condition is limited and whose knowledge is out of date!

In my experience, the research is worthwhile, even though it can be hard going at times. Verity and this Board are a great help. Just remember that it’s your body, and it is within your power to learn all you can about the condition and then work with your GP to find the best treatments for you.

Best of luck!

Platinum
Platinum
 
Posts: 771
Joined: Mon Mar 21, 2005 3:57 am

Postby ScaredSAlly » Tue Jul 12, 2005 12:39 pm

The pill made my symptoms worse and my emotional mood was ten times worse I was severely depressed and severey suicidal ..

I came off teh pill three months ago and my mood at least has improved .. I am now searching for alternatives for my hair loss and body hairr growth.

Have you thought of seeing an endocrinologist ?
ScaredSAlly
 
Posts: 427
Joined: Thu Jun 09, 2005 1:15 pm

Postby DumbBlonde70 » Tue Jul 12, 2005 1:37 pm

Hi Naz!

I was diagnosed with PCOS 2 years ago and I know exactly the way you are feeling. Luckily for me my GP immediately referred me to a specialist and, although I got all the usual lectures about having to lose weight - Which I must add, they are right about cos it does help! - BUT IT IS NOT EASY! I only have to look at a chocolate and the weight goes on me.
I tried for about 9 months to lose weight but it was so slow. The specialist then prescribed me METFORMIN and this has really helped. With a sensible low fat diet and increasing my exercise the weight loss began and since last year I have lost 6 stones. I don't see much of a difference in the excessive hair, my chin really annoys me for that and the hair on my head is still thinner than it used to be and it still tends to come out when I brush it but the doctor says it takes at least 18 months for there to be any noticeable difference in that department.
I must admit I do feel better having been given the diagnosis and being seen by a specialist.
Ask your GP to refer you to a gynaecologist and he will be able to discuss more options with you eg: like metformin etc.
You are not alone. We have all been there and are still going through it.
And I think that the great thing about this site is that we can share our experieinces with each other.
We all get depressed and unfortunatley PCOS can help give us that too. But you have manage to cope with it in the past when you were in SA and you will be able to do so again.
Tell your GP - nicely but firmly - what you want. Yes, it is good to research info on the internet but when you are feeling down about things you want immediate answers from a health care professional. You entitled to them, don't suffer in silence..just tell them.

I hope things begin to improve soon for you.
DumbBlonde70
 

Postby Naz » Tue Jul 12, 2005 1:47 pm

Thanks for your very quick responses.

I have never even considered going to see an endocronologist - but I will think about it now.

Many many thanks....

Naz
Naz
 


Return to Verity Cafe

Who is online

Users browsing this forum: No registered users and 3 guests

cron