Recently diagnosed - need support!

General discussion area. Just been diagnosed? Need to share your story and get some peer support?

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Recently diagnosed - need support!

Postby Wonderwoman76 » Mon Nov 03, 2014 8:11 pm

I was diagnosed with PCOS in June of this year after visits back and forth to the GPs after gaining weight since coming off the mini-pill in Jan 2012. After testing me on and off for various things I was eventually tested for PCOS in June. My Sister has it too and I was slightly surprised at the diagnosis as I do not have all of the 'classic' symptoms (e.g, I do not have acne and do have regular, albeit heavy and very painful, periods.) Looking back I suspect I may've had this for a long time and never realised due to being on the pill since I was 17 and also, as I say, I haven't got all of the symptoms. I feel like I've been abandoned by the GPs and also sought information and help, at my expense, from a private endocrine specialist and dietician. I have been berated for not starting a family at the age of 38...and this wasn't the main reason I wanted support and advice. I don't know if I have fertility issues as I have never tried to start a family and don't know if I will (or indeed can.). I also wonder if I don't have any maternal instincts or feelings because my body is trying to tell me I can't have them anyway? Far too much emphasis was put on this aspect of the condition and not to the constant emotional rollercoaster I feel that I am on (especially a week before my periods) which has begun to govern my life. I feel very frustrated as I exercise 5 times a week (and also qualified as a personal trainer a few years ago) and I am quite sensible with my diet too. But I am just stuck. I feel like my body is not my own anymore, especially as I have gained a lot of weight on my upper body including my breasts. I feel like people I haven't seen for a while wonder what has happened to me. Clothes shopping (which I used to love) is frustrating and upsetting and even if I do allow myself to buy the larger size within a few weeks a new garment can feel too tight again too. Sorry this is very rambling but I feel like I need some advice/suggestions and people just to say 'me too'. Have wondered if Evening primrose or Starflower oil may lighten my dark moods and irritable feelings? Someone...anyone??? x
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Joined: Mon Nov 03, 2014 7:56 pm

Re: Recently diagnosed - need support!

Postby wrigglepup » Mon Nov 03, 2014 10:03 pm

Welcome Wonderwomen 76
I know exactly what you mean, although when I found out I had this my health centre was on it some of them don't seem to grasp how complicated pcos really is.
I don't feel very feminine, although I make an effort when going out for a night out but most of the time I don't feel the need, I don't know if it is pcos or just me! Also I was a total tom-boy when I was young.
Having to fight with weight all the time I never get too excited about fashion, my friend always has lovely little night wear and under wear sets, but for myself I don't see the point as I think it would be a waste of money as I don't think my body looks good enough for that sort of thing, (wonder if I am punishing myself!)
Never been much into children either, even as a child I'd rather play war than with dolls, had loads of friends who were boys when I was young so that was perfect!
Having a breakthrough with the weight issue at present though, currently changed to a low GI diet and hopefully that will be stabilising my body shape at last.
You are not alone. XXX
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Joined: Sat Oct 04, 2014 4:07 pm

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