Newly diagnosed. Please help.

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Newly diagnosed. Please help.

Postby Roisin14 » Thu Mar 13, 2014 5:57 pm

Hello!
I am 25 years old and live in East Sussex. After having my hormones checked in a blood test twice my testosterone levels came up high. I was then referred, by my GP, to have an ultrasound which revealed both of my ovaries have cysts and was diagnosed with PCOS. This came as a bit of relief to me as I have been struggling badly with depression, mood swings, irregular periods, excess hair growth on my neck, lip, 'side-burns', forearms and bottom, thinning of my hair on top and weight gain!!! My dress size just keeps creeping up and up. All of which really take their toll and have been going on for years, since I was about 19.
Tomorrow morning i have a follow up appt with my GP since the scan. He is very supportive and I am hoping (fingers crossed) he can refer me to a specialist and a dietician. I know I need to exercise more so am taking up the 'couch to 5k' NHS challenge to get bk into running again. Has anyone come across any 'quick fix' healthy diets to loose the initial bit of weight? I love eating potatoes, bread (which i have given up for lent) pasta in my diet. I don't want to have to give them up :( I'm worried I am going to have to live on berries and twigs for the rest of my life! I would still like to indulge now and then and both my partner and I are complete foodies!
I also have another concern in that the treatment for excess hair is the combined pill. I can't unfortunately take that as I have suffered with migraines including auras in the past so I am worried about treating that. Has anyone had laser hair removal on their faces? Has is worked and do they come bk? It's just so expensive and wondered whether it was worth it.
I am also worried about conceiving. My partner and I are not ready for kids yet but have definitely decided we do want one in around 4/5 years time, once we are married and have travelled a bit. Im worried that it will effect my fertility so that I won't be able to have kids.
Any advice help suggestions would be great.
Thank you in advance.
Roisin. x
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Re: Newly diagnosed. Please help.

Postby Roisin14 » Thu Mar 13, 2014 5:59 pm

Oh i am also worried about the threat of diabetes as I feel very faint if i don't eat anything! Have always done and get very 'hungry' if i am hungry. xx
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Re: Newly diagnosed. Please help.

Postby Hols969 » Thu Mar 13, 2014 6:17 pm

Laser hair removal saved my mental health I have to say... if I wasn't hairy I was blotchy from plucking etc, I was nervous about having it done as it is expensive but the difference it has made to my life is amazing, I no longer feel self conscious about it any more but as you say it is expensive and is not permanent so you do need to maintain it. I have had 22 sessions now on my beard and really just need to maintain it, I haven't had it done for over a year now and yes a couple have come back which get plucked out and I have one further laser session left so once that is done I will probably go to electrolysis for the remaining stragglers which is mainly around the goaty area as that is the only permanent route but is very slow. I no longer have the black shadow either which is great, you do need to shave for 6 weeks before you have laser for the best possible results and mentally that was really tough but its ok now (I do still shave a few times a week for the blond ones). You can get a cream called vaniqua from the GP which is expensive so not often mentioned and this will slow down the hair growth, it wont get rid of it or anything (SK:N clinic also sell it for like £100 for a tiny tube), it does take a few months for any difference to be seen though. It was worth the expense (prob spent over £2K now). Havent tackled laser on my butt yet but it is hairier than my hubbies :-)

Cant help on the acne front I am afraid, but depression etc is a symptom of pcos, it is a shame you cant do the combined pill as that does help.

As for food, to be honest I think pasta and bread are the route of all evil from a pcos point of view, especially the white stuff so move to the brown, our bodies don't do well with the white stuff and it makes our symptoms worse, including insulin resistance, so we do have highs and lows form eating pasta. I did the Norah Lane diet and its the only diet that I have ever lost weight on and maintained but it is changes for life. I no longer eat pasta, rice etc (partly because I cannot control my portion size which was part of the problem), I do eat potato quite frequently (still struggle with portion size unless its a baked spud). In the early days of the diet it did feel odd not having spag with the bol or curry and rice but actually I no longer think about it at all. I think the biggest thing will be moving to brown (rice is ok but brown pasta is horrible I think!!) Its not to say I don't have pasta because I do and the white stuff but I no longer crave it which I did before, especially Chinese noodles and that sort of thing. I also had mild IBS as well but that has pretty much totally gone since doing the NL diet 4 or so years ago and I think it was down to the pasta and bread (I do no eat bread as well!!) so perhaps my gut just needed a rest from it to reboot it.

Good luck, let us know how it goes.
We are not infertile, it can just sometimes take us longer than the norm (but not always). The best thing to do is get your body in good shape until you are ready for a family (also your partners as 1/3 of fertility issues are now men and lots of us have had sperm issues as well!!) It is pretty rare not to conceive because of pcos so try not to worry too much. Our fertility (egg quality) lasts better for longer so that is the one advantage of pcos !!

Well done on doing the 5K challenge, I did it some years ago to raise money for Verity (cant say I like running that much tho) but it was a good kick up the butt to try and get fitter.

Ask to see an endocrinologist as pcos is their speciality, dieticians can be a bit hit and miss to be honest as most don't know about pcos (Norah who created the NL diet has researched pcos for over 20 years so really knew her stuff) but most dieticians don't unfortunately.
Unless stated, my views do not represent the official views, position or standing of Verity
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Re: Newly diagnosed. Please help.

Postby Hols969 » Thu Mar 13, 2014 6:17 pm

You have to eat regularly with pcos, I get shaky if I don't, so eat little and often and cut out that white pasta as that wont be helping :-)
Unless stated, my views do not represent the official views, position or standing of Verity
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Re: Newly diagnosed. Please help.

Postby Roisin14 » Thu Mar 13, 2014 6:30 pm

Thank you so much that helps a lot! It's nice to know other people are going through the same things! I'll let u know what the doctor says tomorrow!

'Black shadow' never heard that before! Great name.

I think I will save up for the lazer treatment! I've just had to quit my job because of anxiety and depression so have to settle myself down before starting work. Xx
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