At the end of my tether!!

General discussion area. Just been diagnosed? Need to share your story and get some peer support?

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At the end of my tether!!

Postby Glitznailz » Thu Jan 23, 2014 2:33 am

Hello Everyone I'm new to this group and thought if join for some advice and support as I don't seem to have any. I was diagnosed with PCOS after having a scan done of my pelvis ovarys etc. I have symptoms of ovarain cancer so I paid for a private scan as I was so worried and it showed PCOS. I have had lower back and leg pain for a year now and I have developed groin pain and thigh pain. I've been for an MRI for my back which showed up normal and the doctors can't seem to find out what's causing the pain. I take tramadol and cocodimal and amytryptiline every day this doesn't help the pain either I'm wondering if this could be due to the PCOS?! I also have high cholesterol and I have IBS, I think these are all connected! I've been to docs hundreds of times they said they can only help when I want to have a baby but they don't seem to want to investigate the pain/ symptoms of this I just feel so depressed as it all day everyday. I'm only 23 and I sound like an 80 year old lol I'm really looking into getting chinese treatment which includes herbal remedy and sessions of acupuncture apparently this can help with everything has any one tried this? Sorry for blabbing on just need to get it out! Any comments would be very helpful! :-)
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Re: At the end of my tether!!

Postby Hols969 » Fri Jan 24, 2014 11:16 am

Have you been investigated for endometriosis as well? Pain is definitely not a symptom of pcos as I specifically asked the experts that advise Verity as lots of ladies seem to get pain, but it is a symptom of endometriosis and we have lots of ladies on here that have both. I would ask to be referred to an endocrinologist as they specialise in both PCOS and Endo so could give you the answers you need. You may need to be quite forceful with your GP as they can be very hit and miss with PCOS and seem to blame everything on it (easy option I think) and unfortunately are not that knowledgeable on pcos still (don't get referred to a gynae as pcos is not their area).

Good luck
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Re: At the end of my tether!!

Postby Glitznailz » Sun Jan 26, 2014 10:22 pm

Thank you so much for writing back I haven't been checked for this but I do have all the symptoms as well as pain. I'm going to make an appointment tomorrow with the doctor and ask to be seen by someone else I can't live like this any longer. :-)

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Re: At the end of my tether!!

Postby beaglelady » Sun Feb 09, 2014 9:17 am

I've posted on your other thread. an endcrinologist also is hormones only not endometriosis do not recommend seeing them for endo. you need a endometriosis gynae expert. been there done it
had the lot pcos endometriosis, adenomyosis and fibroids. now in early surgical menopause.
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