Coming off PCOS treatment at 53

A place for older ladies to discuss the issues affecting them and share hints and tips relating to PCOS in later life

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Re: Coming off PCOS treatment at 53

Postby crazyDiane » Fri Jun 12, 2015 1:15 pm

How do you feel now Jenny?
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Re: Coming off PCOS treatment at 53

Postby goldenthread » Thu Jul 09, 2015 5:33 pm

Jenny that is wonderful news for you, I am a little confused to say the least since
I went for a pelvic ultra sound examination yesterday and was told that I no longer have PCOS??!!!

I'd been having the most horrendous pain in my left ovary since coming of the pill cerevettes that I took continuously, although even on the pill, I never had a period and only came off it due to my hair falling out at a massive rate. I was told by my GP, just come off it.

Since January 2015, I'd made a determind effort to loose weight, so had been going the gym every other day and for my diet, taking Metformin on a no sugar, no butter, low carb, low saturated fat diet and eating protein mostly and good carbs.
I was exercising from Jan up until May and had lost just over a stone in weight..I came off the pill, due to hair alopecia in the front of my head.

I started getting horrendous pain in my left ovary and was in agony that I stopped going the gym. Yesterday I had my internal ultrasound and was told I have a 5 cm cyst on my right ovary but nothing on my left so don't have PCOS! i left the hospital more confused than happy tbh, in denial.

I have been battling this all my life since I was 10. I'm now 41.

I made an appointment to see my doctor and although she is still waiting for the report, my doctor has said the nurse must be right, I don't have PCOS. I asked for a blood test but was told that I would not need one as the ultrasound would determine if the pcos has gone. I don't know what to do for the best...keep taking Metformin or what I eat or not????

I'm so confused. If there are any ladies out there who understands this, Please please if you can, could you advise me.

Many thanks. Helen
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Re: Coming off PCOS treatment at 53

Postby Hols969 » Thu Jul 09, 2015 6:24 pm

Cysts can come and go as they are only a symptom, so just because you dont have them now, doesnt mean you no longer have the condition! Unfortunately PCOS has such a misleading name that still the thought is that it is the cysts that cause the issue but further research has shown it isnt the cysts, its a hormone imbalance and not really ovary related at all, its just how one of its symptoms manifests itself. I am 46 btw, unfortunately there isnt that much info for us 'oldies' about what may happen regarding the menopause and if its early or later than the norm so its a bit of a guessing game. I am still on a combined contraceptive pill.

I would ask to see an endocrinologist as pcos is their area.

I love the 5:2 diet so you eat normally and fast for two days, it is really simple (I do watch what I eat on the other days too), I do no exercise (I walk a fair bit each day and always climb the escalators etc so I try to get a bit in but I found doing 'proper' exercise and dieting seemed to cause confusion for my body, I seem to lose far more weight when not exercising.

I dont know much about the pill you were on but it may be worth asking to go on Yasmin or dianette as they are good from a pcos point of view but some gp's wont as you are over 40 and their are higher risks but I would rather have pretty much no pcos symptoms and take that small risk personally.

You do still have pcos, the scanner and your GP are wrong..... let the battle begin!!
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Re: Coming off PCOS treatment at 53

Postby goldenthread » Fri Jul 10, 2015 5:10 pm

Thanks so much for your advice Hols969, big hugs to Jenny too, I hope i'm not taking away your post, it was something that really hit me like a train when I was told. I was emotional and didn't know what to feel. I was more confused then anything else. like i'd slid down the ladder back to square 1 in Snakes and Ladders.

Im believing that i'm not surrounded by doctors or anyone who has any knowledge of this condition. I'm 41 and have fought this since I was 10 (when all the changes started). But wasn't diagnosed until I was in my twenties.

I will take your advice and push to see an Endocrinologist.

My gut feeling is something is not quite right.

The battle has begun...once again!!!
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