dealing with LOs with allergies

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Re: dealing with LOs with allergies

Postby wishing » Thu Mar 07, 2013 10:04 pm

Ah yes I think ranitidine is avail off the shelf, his Omeprazole is specially made so has v short shelf life and clearly they change the supplier / ingredients & therefore shelf life constantly, so frustrating! Was not happy he had to go without for 2 days, he had been very poorly too so bad timing!!!
Great info on your fb page, thanks!
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20 week scan was amazing :-)
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Re: dealing with LOs with allergies

Postby *~*PINKPIXIE*~* » Sun Mar 10, 2013 3:24 pm

I had the same problem with omeprazole. Our chemist didn't change supplier but one time the shelf life had changed - from 4 weeks to 2 weeks and the chemist said that they'd changed the 'rules' on shelf life for it and it was 2 weeks from then on. Which like you was 12 days by the time I got it. It was very annoying and my gp needed convincing to issue the prescription every 2 weeks! Hopefully he'll be off it when he turns 1.
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Re: dealing with LOs with allergies

Postby debs » Wed Mar 20, 2013 5:44 pm

Thanks for the reply @Steph, will like your FB group I think! Am going to need all the help I can get. DD has just been diagnosed as CMPA at 18 weeks, so (horrible) special formula for now but tbh she isn't far off from weaning!
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Re: dealing with LOs with allergies

Postby WORRIEDWIFE » Wed May 01, 2013 10:50 am

Hi All,

I just wondered if anyone's LO has got a CMPA? Debs and Steph Pet, I can see that your little ones have been diagnosed too.

William is almost 4 months old and has been on nutramigen since 7 weeks old for suspected CMPA; he had severe wind, explosive poos and was generally quite unhappy - what a difference this milk made, he is such a contented little boy. We have a telephone consultation with a dietician scheduled for the end of this month in preparation for weaning.

I wondered how you all found the weaning process with a CMPA?

Also, William suffers terribly from eczema, we have tried oilatum and now we are using cetraben - it doesn't seem to be helping. Do yourLOs have eczema and have you found any miracle cures? Also, how long did it take to see improvements, I am giving each cream 2 weeks - does that sound fair?

Steph Pet, will take a look at your facebook page xxx
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Re: dealing with LOs with allergies

Postby Steph Pet! » Wed May 01, 2013 7:59 pm

Hey hun

yes both of my boys have CMPI...hopefully my fb page should help you as I've posted TONS of information on there and recommendations for alternative foods etc. We did BLW with Harry and it made life so much easier and he's a much better eater than Archie is!

H has horrendous eczema...we use Aveeno creams and bath oils but he keeps having awful flare ups lately and we can't get to the bottom of what is causing it and the creams don't touch it. We're actually off to the dermatology specialist at our surgery on Friday to talk about it....I'd say 2 weeks is a fair try.
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Re: dealing with LOs with allergies

Postby wishing » Wed May 01, 2013 9:43 pm

Yes my son is too,can't even tolerate small traces in food. Recently dairy challenged him and he reacted to skimmed milk powder that's in 1/2 digestive biscuits.
Weaning was more difficult for us due to reflux but with regard to dairy free wasnt too bad once you know what you're doing.
I found the beginning slightly difficult to find the baby products that didnt contain dairy like baby porridge etc. you soon learn what to avoid and the dietician should give you a list of different names for milk proteins.
My son only likes home made food anyway but quite a few baby purées like the casseroles etc contain milk.
He loves his soya yoghurt, the hardest thing is probably the lack of cheese / spread. There are soya alternative cheeses which he will eat but they aren't the same. Doesn't like the alternative chesse spreads at all!
Good luck!

We have a mild eczema which is under control with oilaitum bath and cetraben cream nightly .
TTC since Sep 2008. Diagnosed PCOS 28/04/09
12 cycles clomid August 09 - January 11
July 10 HSG
January 11 Being referred for IVF.
20/02/11 BFP!!! on clomid cycle No 12
17/03/11 early scan :-) saw our teeny tiny baby & heart beat 7+4
19/04/11 dating scan, amazing!!! dated 13+1
20 week scan was amazing :-)
8/11/11 our beautiful baby boy Callum arrived!
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Re: dealing with LOs with allergies

Postby WORRIEDWIFE » Thu May 02, 2013 8:10 am

Thanks for your replies. On my phone so will keep it short. Steph pet i have looked at your Facebook page, it's excellent! I suppose i am just finding the thought of weaning a bit overwhelming. There is such opposing advice and that without his allergy! Think i am gonna do baby led weaning, if you look at the nhs guidelines this is basically what they are advocating. Although i might not be a purist and will give him a spoon probably loaded with food for things like porridge. It seems like with his allergy it will be easier to do blw!

Will no doubt be on here nearer 6 months for more advice!
Diagnosed with PCOS in 2005
TTC since Aug 2010
No periods/ovulation. Prescribed 100mg clomid. Hubby poor sperm morphology
Clomid cycle No 1 - BFN
Clomid cycle No 2 - BFN
Clomid cycle No 3 - clomid resistant

IVF with ICSI - EC 27/04/12 - 18 eggs/12 fertilised/6 to blast - ET 02/05/12 - one 3BB embie put back in, 2 frozen.
BFP - 10/05/2012. EDD 19/01/2013
Baby William born 03.01.2013 weighing 9lb 10.5oz
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Re: dealing with LOs with allergies

Postby Kasha » Thu May 02, 2013 12:45 pm

BLW is easier regardless of allergies! When i weaned Tig the advice wasn't for BLW and that was only just over a yr ago. I specifically spoke to the hv about it before i weaned her and i was told they werent really advocating it! Hv is calling today, might be interesting to see what she says!
My eldest had eczema, like me, but well controlled and she seems to be growing out of it. We use hydrocortisone when it flares up, and junior oilatum cream or epaderm (the emolient not the cream) For us tho its a case of avoiding certain products,i only use hypoallergenic toiletries (tho i am trying different ones intermittently) and stick to non bio detergent for example. Might be worth keeping a check on toiletries or washing powders as apparently the companies do change ingredients (this happened to me and i was sensitive to one ofthe things theyd changed)!
Piriton helps too!
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Re: dealing with LOs with allergies

Postby cliveceltic » Sun May 05, 2013 8:32 pm

Just picked this thread up again. We are in the weaning process and c has cmpa confirmed but with ks soya allergy too we are avoiding that as well. I have found making rice pudding and custard from scratch with pay milk seems to go down well. We were told last time not to use rice milk as it has arsenic in it (would you even believe it) but our HV was suggesting to use it this time around as she uses it!! Funny how things change. Another useful thing is hummus. Apparently its loads with calories and calcium or something. We are giving x it on toast, in a sandwich and as a dip!! HV suggested giving some everyday. Struggling with puddings that have useful fats in them other than the homemade batch which by the way 1 carton of oat milk makes a batch of each to freeze in small portions.

Hve to confess to avoiding blw other for snack type foods as we need to get the milk type foods ito her and this comes by spoon feeding. Haven't found much finger food useful for fats and calcium. Last time around I was given recepie books for nutramigen and neocate but neither went down well and smelled awful nd Keira is such a faddy water these days.

Once l was 1 we slowly introduced cows milk and luckily she seem fine on it 2 years later althought a bar of chocolate or cake can very quickly produce a nasty poo on occasions. Hoping x will be the same. We buy baby jars and picked without added milk but she is eating ordinary white bread which I believe contains skimmed milk powder. I also bought a sunflower spread thinking it was dairy free but after using it a while realized it has skimmed milk powder too!! Switched to 'pure' spread now and tryin to make my own cakes and biscuits for her.
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Re: dealing with LOs with allergies

Postby sicily » Sun Jun 09, 2013 6:48 am

Hi, my LO has recently developed a slight rash on abdomen - it has come and gone over 3 weeks and is usually flat but now beomng raised and dryer. I'm trying to rule out wash & laundry products - can anyone advise what they have/haven't had good results with? Seeing GP on Monday. Thanks!
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Re: dealing with LOs with allergies

Postby Constance » Wed Jul 24, 2013 11:09 am

Hi ladies, hope you are still reading this thread...

A question to those with babies with reflux - is it a 24 hour thing or can it be daytime only? We are trying to figure out what is upsetting our little one, reflux has been suggested and we tried Gaviscon with not much change, his symptoms show daytime - lots of crying, arching his back, fighting the bottle, etc, however nothing like this happens at night - well we had some difficult nights, but very few compared with the amount of difficult days - pretty much all of them!

We are not on any reflux medication because the paed wants to rule out cow's milk allergy first, we have been giving him aptamil pepti for 2 weeks now and I can see very little improvement, so I'm wondering whether I should try Nutramigen or shall I complete my 4 weeks' trial with aptamil pepti first? Another thing is - since we started pepti his poos only come every 3 days and he gets lots of smelly wind - is that normal with hydrolysed formulas or is that a sign that he in not allergic to cow's milk but perhaps has lactose intolerance instead???

Lots of questions, thank you for any help.

Oh, the HV just phoned and asked how we were and she suggested he was suffering more daytime because he had more milk, so we should try Nutramigen in case aptamil pepti still hurts him...
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Re: dealing with LOs with allergies

Postby sammykins » Thu Jul 25, 2013 7:40 am

I don't really understand why they make you switch milks so often - sounds like they don't really have a clue and trying to diagnose a potential allergy/intolerance where there might be none.
In my opinion, it would be easier to rule out reflux first - for us, the combination Gaviscon + Ranitidine had pretty much instant results (Gaviscon on its own didn't do much). If you were given Ranitidine to try for say a week or so, you would see if it makes a difference. There's loads of specialised milks to try out, are they seriously wanting you to try each of them for 2-3 weeks every time before checking for reflux?
What's your gut feeling Constance? All the symtpoms you describe could be both allergy/intolerance or reflux, my LO had the same symptoms but I went down the reflux route first as it was more likely to be it than allergy/intolerance.

Big hugs, you haven't had it easy to past few weeks!
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Re: dealing with LOs with allergies

Postby Constance » Thu Jul 25, 2013 9:14 am

I'm losing my mind here and just want to find out what it is now, we've had 7 weeks of unhappy baby and stressed mummy... I have a GP appointment today and I have no idea what to tell him/her, plus I want to get the formula on prescription as well. I don't really want to stop the special formula right now and start from the beginning, if we try nutramigen and it does nothing than we will have to go for reflux med and if that is ok stop nutramigen to see if that makes any difference, otherwise we will never know. Nutramigen is supposed to be better if the intolerance is more severe, that's why I don't want to abandon it right now and switch just to reflux drugs, just in case aptamil pepti is not quite good enough to do the job. I think I may ask for both today as I am so fed up.

To make things worse my SIL went to her GP yesterday with her 11 weeks old baby who started vomiting after feeds and sticking her tongue out during feeding about 2 weeks ago. Well, she came back home with proper reflux medication to try for 2 weeks. :shock: And they have no crying or arching backs or screaming in pain, and she sleeps through the nights on flat mattress and gets put on a swing after meals etc. When I first saw my GP he sent me home with 3 days worth of gaviscon, I changed surgeries and got a massive amount of gaviscon, but it was not really doing anything so I went private and was asked to try him on the cow's milk allergy formula for 4 weeks before going for reflux medication. And yes, he has improved slightly, but is it because his colic is improving in the meantime??? or because he is now slightly older??? I am losing my mind here and don't really know any more. And especially I'm so scared the GP is going to send me home with no prescription for formula or reflux meds at all... :cry:

I think I will have to go for a follow up visit with the private paed, but it's almost an hour's drive through London so I'm not looking forward to it...

Thank you for your help. I appreciate any comments x
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Re: dealing with LOs with allergies

Postby sammykins » Thu Jul 25, 2013 9:51 am

When Maissa was 8 weeks old and Gaviscon wasn't doing anything any more, I demanded Ranitidine during her 8-week check. I was lucky that she decided to proper projectile vomit during her check, so the GP could see that it was more than just posseting.
Have you videoed Simon during a feed to show your GP? How are his nappies? When I was suspecting intolerance at the beginning, both the GP and the paed told me that she would have foul nappies and skin problems if it was allergy/intolerance, which she didn't have, which helped in going straight to reflux meds.

Like I said, I think reflux is more common that allergy/intolerance, which is probably why your SIL got reflux meds to try first, and if that doesn't do anything, then they can try going through the different milks.

Oh, and just so you know, Gaviscon on its own rarely does anything. It worked for us for 2 weeks - after which time, it was back to normal, and that's when I asked for ranitidine. While Gavsicon is pointless for us on its own, it does have its place in our drugs regimen, as Maissa is always a lot worse if we forget to renew the Gavsicon script on time, so she does need it with ranitidine.
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Re: dealing with LOs with allergies

Postby Constance » Thu Jul 25, 2013 4:50 pm

Ah, thank you.

I met my other new doctor today during our 6 weeks check and he is the nicest doctor I have ever talked to, I'm in love, lol. He gave me a prescription for a week of Nutramigen and told me to phone for more if it works for us. He says he wants my private paed to tell him what reflux drugs to use and how much, so I've made an appointment for this Saturday. I feel so much better... I may actually get to the bottom of this.

Yes, I think the way to do it was to go for reflux drugs first, but the paed suggested formula change before we go for "unnecessary chemicals "- meds for reflux. It was a good suggestion provided that the milk intolerance was the problem, not so good if it's reflux or both, I guess that's just one way of doing it. Right now it's either Nutramigen will fix things for us or we'll have to ask for the reflux meds and if they work we will try to get him back on normal formula. This is the only way we will know if there is a milk protein intolerance involved.

The pead thought he might have the milk protein intolerance because he is quite mucusy with heavy breathing at times, he has a skin rash on his face, head and chest (which she thinks may turn into eczema if formula not changed in good time) plus all the symptoms that are identical to reflux. She has over 20 years experience working with newborns and says it is better to go for a change of formula fist to prevent any serious skin conditions like eczema, or asthma to start... rather than wait till it's too late. Not a good approach when your child has reflux only, but makes perfect sense otherwise. The only problem is that he may be mucusy due to being born by c section and the skin rash may be just a standard thing... so it is all about figuring out what is going on.

And about driving me totally insane in the meantime...

And to answer your questions - his nappies kept changing - they were very watery during the first week - almost like pee, then they were soft and there were lots of them, normal colour and consistency, and now they are a bit darker and come every 3 days (this in on the pepti formula). Not sure what you would call a foul nappy????

I'm happy for my SIL to have the treatment so quickly, it just reminds me and annoys me that I'm being pushed the long way and she had hers after the first visit!

x x x
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Baby boy born on 25/06/09
M/C Jan 2012
Baby boy born on 31/05/13

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