Which contraceptive pill is best

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Re: Which contraceptive pill is best

Postby Hols969 » Tue Oct 01, 2013 1:10 pm

Are you just seeing a GP or an endocrinologist?
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Re: Which contraceptive pill is best

Postby Shambolina » Wed Oct 02, 2013 9:49 am

Hello :)

Ive been reading through this thread and I'm shocked as to how little doctors actually know or indeed care about the different types of pills available.
I have just been to my gp and requested a change of pill as i was on rigevidon 150/30 and my mood was so low my partner was noticing and how hard is it to explain to a man that hormones play havoc with you?

Anyway i have been changed onto cilest but im still apprehensive about how much better it is going to be? Does anyone have the same problem? I think half the issue is that doctors dont actually have any rhyme or reason for changing you it's literally just on a 'trial and error' basis.

Any experience or advice would be very greatfully received, thanks girls :)

Xx
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Re: Which contraceptive pill is best

Postby Meringoo » Sun Oct 20, 2013 12:13 am

Cilest is a good pill and if you weren't feeling right on Rigevidon (which is Microgynon), then Cilest may be better for you as it is an oestrogen-dominant and anti-androgenic pill, so if you were experiencing progestogenic effects/problems related to progestogen and androgens (low mood, acne, PMT symptoms, hair issues...), then this change should help. You'll need to give it 3-6 months though.

I liked being on Cilest, but as I also have endometriosis, I found I just couldn't be on a combined pill anymore. It is a good pill.

Hope this helps xx
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Re: Which contraceptive pill is best

Postby Meringoo » Tue Jan 21, 2014 7:53 pm

Hey ladies,

Well, after nearly 2 glorious years on Cerazette where I've been endo pain-free and feeling normal (for me), my skin has had the most dramatic acne break out ever, it seems (and not just confined to my face)! I tried antibiotics, which helped a little but the effect wore off. My skin was sometimes a little oily and spotty - but like I've said before, I get that on combined pills too. However, I decided enough was enough! Yes, I've enjoyed not having periods, no pain and no breast tenderness, no PMT...but, my skin is really getting me down! I still think Cerazette/Cerelle is the best progestogen option if oestrogen is contraindicated (desogestrel is still better than levenorgestrel or the depo provera shot), but progestogen alone can't be as effective at the hair and skin stuff we suffer with, because of the science behind it.

Typical! I can't believe it! There's always a catch! So, back on Yasmin and looking forward to seeing my face look less teenage!!!

Anyway, I think I was pretty lucky with Cerazette. It gave me my life back. I'm just hoping my gynae issues are more settled now so I can enjoy being on Yasmin!!

Hope you're all ok if you're reading this! x x x
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Re: Which contraceptive pill is best

Postby ZM » Thu Jan 23, 2014 6:04 pm

Hi Meringoo & Ladies. Just thought I would give you a little update on Dianette and what is happening with this somewhat controversial pill. As some of you may know I have had a fairly difficult protracted battle to stay on Dianette long term as it is only available for acne for up to 3-4 cycles on current UK prescribing guidelines and is not licensed as a contraceptive. These guidelines were put in place due to the fact that there was evidence to show that it carried a higher risk of DVT than other third generation combined pills. Your GP (if you are allowed to go onto Dianette in the first instance) will then want to swap you over to another pill. There has been for sometime evidence out there to show that the risk of DVT with Dianette are actually no more common than for any other third generation pill. There is also evidence to show that you are at greatest risk when starting a new pill or swapping onto a new pill. Hence if I came off Dianette and went on Yasmin (which does nothing for me) I would actually be running an even higher risk of DVT for a period of time, with no actual benefits as my PCOS symptoms would return!

This is the basis for my argument that has seen my GP prescribe off licence with (backed up by my supportive dermatologist) and respect my right to make this decision. At my last appointment I was informed that further evidence had come out along these lines and Dianette was to be re-licenced in France as a contraceptive (where it was previously banned). I hope that if there is anyone on here who like me finds Dianette a miracle for PCOS, does not get on with the alternatives, and has been fighting their GP, this information may help them go into the surgery well informed and empowered. Whilst a GP cannot be forced to prescribe off licence, a good GP should respect your autonomy to make that decision for yourself after reviewing the evidence and accept full responsibility. Many GPs will prescribe off licence with a letter from a consultant (a good way to push getting yourself seen if also battling to get a referral). If anyone is struggling please get in touch and I can assist in pointing you in the direction of the relevant evidence that may help you to have a more balanced discussion with your GP.
Self diagnosed: 1999
Formally diagnosed after much pressure!: 2005
Current regime: Massive amounts of weight bearing exercise, and controlled diet. Have taken/tried Metformin, Dianette, Yasmin, Marvelon, Accutane. Now on Spearmint, Agnus Castus and low dose Spirinolactone.
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Re: Which contraceptive pill is best

Postby Meringoo » Thu Jan 23, 2014 8:02 pm

Hi there!

Thank you for your post! I'm sorry you've been through so much trying to get the right pill for you! I must admit, I'm not as up to date with Dianette these days. I was told a few years ago that as long as the benefits outweigh the risks, it is possible to remain on a certain pill. I know that Dianette isn't licensed as a contraceptive - so it won't be prescribed as one, even if it is also being used as one - but as an acne/hair/PCOS treatment, surely a gynaecologist or endocrinologist could offer his/her advice to your GP, and as it would be their specialist opinion, that should override the GP's decision (or influence it at least)?!

If you don't smoke, are losing weight so your BMI is in the "safe zone", AND this is the only pill that helps you, with regular monitoring from your GP (possibly a different GP), it *should* be fine. I know of women who have been on it for years. Sometimes it depends on the GP, GP surgery, their formulary, budgets etc. It seems so ridiculous that we have to fight for the right treatment, and to be considered on an individual basis!!!

I hope you get your Dianette back. I recently changed doctors surgeries and the reaction was very different when I asked for certain pills. The surgery I was with most my life had me begging and pleading for Yasmin and certain painkillers (I have endometriosis too). I was usually ignored. Moved cities and surgeries, and wow...the complete opposite. Moved again, and I walked in, said my skin was bad, and got handed a prescription for Yasmin within minutes - no PCOS conversation. I was expecting to beg, and tell them I was "worth the money!!!" etc like I had to at my original surgery, but no, totally different.

Good luck!!! Please keep us posted and thank you for offering to help other ladies in your situation too! x x
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Re: Which contraceptive pill is best

Postby ZM » Fri Jan 24, 2014 12:00 am

Still on it at the moment! (now 3 yrs this time). I do still have to get the boxing gloves on every time I walk into the surgery and find a locum there rather than my own GP. I feel very strongly that the guidelines are causing problems for many women who do really well on Dianette hence offering to help them fight their corner too! TBH at the last apt I probably went slightly over the top and advised the GP that her DVT risk was probably greater than mine due to her age, high BMI and obvious smoking habit... hmmmm maybe not my finest moment
Self diagnosed: 1999
Formally diagnosed after much pressure!: 2005
Current regime: Massive amounts of weight bearing exercise, and controlled diet. Have taken/tried Metformin, Dianette, Yasmin, Marvelon, Accutane. Now on Spearmint, Agnus Castus and low dose Spirinolactone.
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Re: Which contraceptive pill is best

Postby Meringoo » Fri Jan 24, 2014 3:16 pm

Hahaha! Love it! Sometimes you have to point out the obvious! Well done! x
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Re: Which contraceptive pill is best

Postby Hols969 » Fri Jan 24, 2014 3:50 pm

It is mad isn't it all the hassle but I do agree that I think its down to your GP as to if they will prescribe things for you. There never seems to be a rule book, they make it up as they go along.... Im waiting for the day (as Im 45 in May) for my GP to say I can no longer be on the combined contraceptive pill because of my 'age' - hasn't happened so far. In my view, there are risks with everything but if the pluses outway the risk then its worth it, I would rather perhaps have a slightly shorter life but a good quality (with no major pcos issues) than carry on with miserable pcos stuff....
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Re: Which contraceptive pill is best

Postby BumbleBee_x » Sat Feb 08, 2014 10:37 am

Hi, looking for some advice please. After reading up about it, I am even more confused about which pill would be best for me. The doctors I've talked to have not been helpful at all. I am 20 yrs old and was diagnosed with PCOS 2 years ago. Started off with just irregular periods and cysts on ultrasound but no other symptoms and hormone levels normal. Now, my most recent blood test showed that every hormone level was high, including oestradiol which I don't really understand. Also acne and hirsutism is worse than ever before even though it is still not severe. Periods are now regular which I also don't understand, considering everything else is worse. I have been thinking of taking the pill for a few months mainly for acne and hirsutism issues, but may also require it as a contraceptive. However, I haven't come to a conclusion as to which one is best and whether even taking the pill at all is the right thing to do for me. My periods have just started to get regular again and I don't want to mess this up. Also, I really don't want to put on weight. The doctor suggested dianette but I am very concerned about the risks of this pill. I know my other choices would be yasmin, cliest or marvelon but I don't really understand the differences between them and which one would be best, or if these would be safer than dianette. Basically just really stuck on what to do. Thanks in advance for any advice.
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Re: Which contraceptive pill is best

Postby Meringoo » Sat Feb 08, 2014 6:29 pm

Hi there,

Dianette would probably be best but Yasmin would definitely be the best alternative. Other pills don't have the same anti-androgenic "strength" as these pills, so they won't help so much. Don't worry about not ticking all the PCOS boxes. The results can change a lot, and really it's about making you feel happier and more comfortable, plus managing the symptoms that affect you.

If you keep your weight in the healthy range as best as you can, don't smoke and lead a fairly healthy lifestyle, the side effects of Dianette and 3rd/4th generation pills aren't as unsafe as they seem.

As far as weight gain goes, with anti-androgenic pills such as Yasmin, you should be ok. Usually it is with the progestogenic pills such as Microgynon, weight gain can occur, but oestrogenic pills (Dianette, Yasmin, Marvelon, Cilest), the weight gain you *may* get is more likely to be water retention (though less so with Yasmin as it has a diuretic effect). So, if you're careful with diet and exercise, you'll be fine. I have lost lots of weight on Yasmin and Marvelon in the past, without real issues. In fact, lots of women with PCOS find that weight loss or maintaining a stable weight is easier on the combined pill that suits them.

Hope this helps xx
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Re: Which contraceptive pill is best

Postby Hols969 » Sat Feb 08, 2014 7:07 pm

There is a minimal risk with all contraceptive pills you can take - there was an article this week about the 'risks' of Yasmin but I have been on it for at least 10 years and prior to that marvelon and dianette (so all in all I have been on the pill for about 25 years) and from my point of view, the small risk is worth it as it does keep the majority of pcos symptoms at bay.
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Re: Which contraceptive pill is best

Postby mettie » Mon Feb 17, 2014 10:15 pm

I am having trouble again with my Doctor. My last Doctor finally gave in after I lost some weight put me on Yasmin. They put me on this pill because the Consultant I was under said I had to be on that particular pill. It suits me really well. Keeps my acne at bay, let me have a "show" which none of the other pills have done.

I went to my new doctor tonight and they refused to give me Yasmin because my BMI is 34. I know this is high. I know all the risks, but Yasmin is the only pill that works with my PCOS. I have lost over 7 kg since I saw my last doctor.

Why oh Why is it so difficult to get this pill. Surely somewhere there is some guidance that I can take to the dr to help me get this pill.

Can anyone help please.

Many thanks
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Re: Which contraceptive pill is best

Postby Amy89 » Tue Feb 18, 2014 10:36 am

Hi im going to the doctor tomorrow as they want me to change my pill. Im on yasmin and have been for about 6 years. The doctor won't let me have this anymore due to new research on leg clots. Im worried which pill to go on to now as I get low moods, anxiety and I don't want to put any more weight on. Could anyone recommend a good one?
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Re: Which contraceptive pill is best

Postby Hols969 » Tue Feb 18, 2014 4:56 pm

I've been on it over 10 years, you can stay on it as far as I know. There have been these stories/risks for years and I think as long as your BMI is ok, don't smoke etc then I'm not sure why you should change if you are willing to take the very small risk. I've been on dianette, marvelon and Yasmin and I think they are all higher risk now!! I think they do have to review the medication, is it a gp you are seeing or a nurse?
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