Hi I am new to the Discussion Board, I have been diagnosed with PCOS since 2003, I am looking for a little bit of relevant advice and support from you lovely ladies - hoping to find someone out there who gets what I've been through. Getting the right support is hard to come by!
I am now 33, and was diagnosed with Adenomyosis in Feb 2012, after numerous investigations, tranvaginal and abdominal scans initially it was always put down as 'unexplained Menorrhagia' prolonged heavy bleeding, they failed to find the cause until I haemorrhaged and had an emergency scan while it was happening. I have gone from having no periods, anovulation to bleeding consistently non stop since 2010 for two years, and again have been struggling to get the bleeding under control since August 2012.
I am an extremely lucky mummy to 4 children, eldest boy 8yrs, B&G twins 4yrs which both pregnancies required fertility treatment and before diagnosis of the adenomyosis -against ridiculous odds I caught pregnant naturally and gave birth to a healthy baby boy now 2yrs...it was a very worrying time needing lots of monitoring, twice weekly growth scans, to have caught whilst I was on all these medications to control the bleeding! (He's my little miracle baby) and to have caught in such small window of just a 2 day break from the bleeding! After bleeding for 2 yrs straight! I bled throughout the whole pregnancy, I was just happy to make it to full term, and needed induction at 37 weeks after a massive bleed. I have dealt with haemorrhaging, last one one post partumn haemorrhage,. I have had lots trials of different medications and dosages over the years of Mefenamic Acid Tablets, Tranexamic Acid, and both of these took together. In addition to theses i've had Norethisterone, Provera-Medroxyprogesterone Acetate, all of the above medications taken together to no effect. I had the Mirena coil fitted in Jan 2011 after 6 months it was finally deemed ineffective and was removed because the bleeding persisted in fact completely unmanageable and it caused a whole lot of other issues, it did not address the pain or bleeding problem, and I struggled with it emotionally. It nearly cost me my marriage. I was put on microgynon when I was 14 to manage periods, over the years I have tried the mini pill, particularly Loestrin 30 which contains norethisterone to help with the PCOS which only caused me to have large ovarian cysts.
I've been on Prostap injections June 2013 to put me into an artificial menopause for 8 months which worked for a good while but then became ineffective as time went on. I have had hysteroscopy and D&C's and I'm now scheduled to have a total hysterectomy in April but my consultant is quite clearly a mirena coil advocate, and has since put a spanner in the works....again she is suggesting doing an uterine ablation but means also having to put the mirena back in despite the problems it has caused before...obviously I declined.. I then feel my consultant is clutching at straws, she has really made me doubt opting for this hysterectomy that is less than a month away, and she is now suggesting I try the contraceptive pill Cerazette, and believes it to have 'reduced risk' of ovarian cysts...'but there are no guarantees' she said... wouldn't that just be masking the symptoms, buying her time, money saving tactics? I'm really upset that I was never given this option to try before have gone through all the pre op assessments! I'm at a complete loss with what to do now, my mind was set and geared up for the hysterectomy, it wasn't a decision I took lightly, especially as I have completed my family...Has anyone tried Cerazette to control the symptoms of Adenomyosis? Do I jeopardize my op to try Cerazette? Has it worked for anyone who has adenomyisis, does it address not only the bleeding issue, but the debilitating pain that comes with it? I'm tired of feeling groggy on strong painkillers all the time. I'm tired of living with hot water bottles strapped to me. It's controlled me, my life, limits everything in it and it's been soul destroying for me and my husband, our sex life is non existent, it's been nearly 5 yrs since the initial problems started. I have tried to just cope and deal with it, to avoid going down the invasive surgical route but feeling terrified of making the wrong decision, trapped and doubting myself...my consultant has really put the fear in me!
