advice wanted re endometriosis

Other long term effects of PCOS

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advice wanted re endometriosis

Postby beaglelady » Sun Dec 04, 2011 9:25 am

Need the advice of any other ladies with endo. I had been fine since my hyst but developed cysts which on scan look to have partially burst. I also have signs of adhesions. I am having pain after bowel movements and feel sore. My consultant wanted to see if things calmed down over the next two weeks and to get in touch with him. He is reluctant to operate again because of the adhesions. However I just dont feel right. I have got an appt with my gp on tuesday but feel like im pestering. Has anyone else had this post of pain ?
had the lot pcos endometriosis, adenomyosis and fibroids. now in early surgical menopause.
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Postby Cloudyrain » Sun Dec 04, 2011 11:30 am

Hey hon, I'm also in the PCOS and Endo club, and totally understand your pain.

I haven't had a hyst, but I do know a few ladies who have and from what I know of their experiences you are not alone. When you had your hyst did they use diathermy to destroy the adhesions or did they excise them? I had a lap 2 months ago for extensive adhesions and they used diathermy - already my pain is coming back. Unfortunately, excision is recommended, but as you probably already know, but most Docs can't do it.

Have you visited the Endo-Resolved website? There is loads of information on there, and the ladies on the forum are virtual experts in treatment and management of endo. There is also so information about the endo-diet which loads of ladies have success with.

I hope you get something sorted honey, and don't worry about your GP. I always worried I would do my GPs head in, but a few weeks ago my slightly tipsy friend (who is a GP herself and knows what I have) cried and said she hates seeing what I have to deal with, but as a GP there isn't much they can do themselves.

Good luck honey, I hope things pick up for you soon xxx
Diagnosed PCOS and Endometriosis in 2011 after 15 years fighting!

Next East Mids Meet Ups: Sunday 29th July and Sunday 23rd September at 3pm, Nottingham Knight Pub


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Postby beaglelady » Sun Dec 04, 2011 7:13 pm

My consultant is an excision specialist. I didnt have adhesions at time of my hyst but scan done last week showed them. Not heard of that website will have a look thanks
had the lot pcos endometriosis, adenomyosis and fibroids. now in early surgical menopause.
beaglelady
 
Posts: 687
Joined: Fri Nov 19, 2004 2:27 pm
Location: lancs/west yorkshire border


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