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Late Onset CAH.......anyone?

PostPosted: Mon Sep 26, 2011 10:25 pm
by Carrie77
Hello Ladies!

Well it looks fairly likely that I may not in fact have PCOS but late onset CAH.

The net is a little sketchy on this subject, combined with a lot of conflicting information!

It would be great to hear experiences of anyone that has this condition, any information would be really greatly appreciated!

Thanks in advance,

Carrie x

PostPosted: Fri Sep 30, 2011 11:15 am
by Sammi
I don's have CAH but I was tested for it. I was also tested or Cushing's and Conn's syndrome but I don't have those either!

If you have been referred to an endocrinologist and they didn't check for this before moving onto IVF then that is quite poor. They can all be tested by a simple blood and urine sample so hardly involved!

The only positive thing is it seems easily managed by a certain steroid (begins with g!). And this should lessen PCOS-type symtoms like oily skin/hair and lack of periods. And that can only help with getting pregnant.

I hope you get a proper treatment plan soon,
X

PostPosted: Sun Oct 02, 2011 8:50 pm
by Carrie77
SammiV, thanks so much for your message, much appreciated.

The more I think about it all the angrier I get to be honest. Am going to wait for a firm diagnosis before I let my anger errupt lol!

Carrie x