WHERE DO I GO FROM HERE?

Why we all seem to carry it all around the waist...

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WHERE DO I GO FROM HERE?

Postby joanneMCDOWELL » Mon Jun 25, 2007 5:42 pm

HI I WAS DIAGNOSED WITH PCOS 5 YEARS AGO BUT LOOKING BACK I THINK I HAD THIS FROM I WAS ABOUT 18 (34 NOW), I HAD NO PERIODS FOR OVER 1 YEAR BUT AT THE TIME PCOS WAS UNHEARD OF.
ANYWAY I REALLY DO NOT KNOW WHERE TO GO FROM HERE, I HAVE BEEN ON DI ANETTE WHICH DID HELP WITH THE LUMPS I WAS GETTING IN MY GROIN AREA BUT I AM OFF THAT NOW AND THE LUMPS HAVE RETURNED, I HAD ALSO BEEN ON METFORMIN AND IT HELPED ME GET PREGNANT BUT WHEN I WENT BACK TO MY GYNO HE SAID THERE WAS NO PROOF THAT METFORMIN WOULD HELP LONG TERM AS THERE WAS NO FIRM PROOF IT WORKED. I AM ABOUT 1 AND A HALF STONE OVER WEIGHT, I AM ON A LOW GI DIET PERMANENTLY, I HAVE LOW SEX DRIVE, AND LOW ESTEEM BECAUSE NO MATTER HOW HARD I TRY I JUST CAN'T LOOSE THIS WEIGHT, I AM SERIOUSLY DOWN WITH IT ALL, MY GP KNOWS NOTHING, EN FACT I KNOW MORE, CAN ANYONE PLEASE HELP ME?

J
joanneMCDOWELL
 

Postby Mazarin » Mon Jun 25, 2007 6:34 pm

If you already had a dignaosis yet you need to find a GP who will support you and hopefully provide Metformin, it does work but some people think it doesn't which is crazy these days.... if you get a GP who will support you, perhaps a female GP would be best and ask them to provide you with Metformin and hopefully it will work for you.
Mazarin
 

Postby joanneMCDOWELL » Mon Jun 25, 2007 7:16 pm

thank you, i think my GP will give me metformin but she isn't happy to do so as it is yet to be licensed for pcos, not sure of the log term side effects
j
joanneMCDOWELL
 

Postby sky » Thu Jul 05, 2007 5:26 pm

Hello,

I have just recently been diagnosed with PCOS although I think, Like you, that I have had it for a lot longer. I have been put on metformin - Slow release and am in my first week of this. Seems to be fine so far - no side effects. I hope that you can get sorted soon. I think Metformin is worth a try. I was interested reading your post about the lumps you described in your groin area. I have one lump in mine and have never actually thought that it could be linked to PCoS. I havn't even told my doctor/consultant about this... can you describe them? And what did your doc say about them?

Many Thanks,

Sky
sky
 

Postby emma05 » Sun Jul 15, 2007 8:54 pm

Hi Sky,
I also have had these lumps in my groin area, to describe them, they are like boils which become filled with bloody water and you feel like you need to pop it like a spot!!!!!! sorry for the horrible description!!!!!!!! LOL,

I have had problems with one or two occurring out of the blue for a few years now,and was getting really embarrassed and fed up with them! Anyway, I got sooo fed up of them I actually went to the Doctor, and she was great, what I had (which I not sure if it is similar) but it was just an infection of the skin follice,it spreads and gets worse if you leave them. Anyway, she gave me some antibiotics, as its the only way to get rid of the little meanies, and in the end I ended up taking a months worth of antibiotics to get rid!!!!!!!!!!!!!! thankfully, (touch wood) they haven't come back yet :? and I am hoping it stays like that!!!!!!!!!

I have a sneaky suspicion that it maybe linked to PCOS!? Doctor, didn't know how they occur, but all she told me was to wear cotton knickers, and keep cool!!!!!!!!!!! Let me know what you think, would be interesting to see other comments on this too, :)
emma05
 
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Postby MaxiMum » Sat Jul 21, 2007 10:08 pm

I think I have had the same lumps you are talking about, mine can get quite large and sore - I find they go away if I squeeze them to get the blood/pus out :oops: (sorry if tmi!)
MaxiMum
 

Postby Misunderstood » Tue Jul 24, 2007 3:17 pm

Hello Joanna,Emma&Maximum.Just read your comments especially on boils in the groin area. Are you sure that it isn't Hydradenitis Suppurtiva that you have? As a sufferer of PCOS for well over 30 years,I was diagnosed with HS 2 years ago.It's a nasty complaint and one of the symptoms of PCOS. In fact it was my dermatologist who diagnosed it(GP didn't have a clue what it was)and asked me if I had PCOS(GPdidn't have a clue about that either!!!!) I am now in the capable hands of an endocrinologist(about 30 years too late) and a wonderful dermatologist who has controlled the HS. I have written on this site before about HS but my computer hasn't been working for a month so I am just catching up with the Verity site from which I have learnt so much and read such interesting accounts from the people who have this complex set of symptoms which is known as PCOS. In fact,Verity was one of the main things I missed while my computer was out of order. Nice to have made your aquaitance!!!!!
Misunderstood
 
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Postby emma05 » Tue Jul 24, 2007 8:48 pm

thanks very much for your reply, I must go and ask my doctor about it! My doc was unsure about them as well!!!!!!!!! I dont think she knew, for now they have disappeared but if they come back I will definetly go back and tell her, many thanks,
emma05
 
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Postby MaxiMum » Wed Jul 25, 2007 10:13 am

Thanks for the info, will go to the Dr's next time I get one to see what he says. I don't have them constantly - they just pop up every now and then, usually if I'm feeling a bit stressed or low.

Nice to have made your acquaintance too - great site eh?! - where else would we be able to talk to people we didn't know about stuff like this?! :lol:
MaxiMum
 

Postby kavski » Mon Aug 06, 2007 9:35 am

I am so pleased that I am not the only one. I to have have these nasty boil like things. My doctor did not have a clue and told me to see how they were in a week. Just felt i had gone through the whole embarrassing visit to the doctors for nothing.
kavski
 
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Postby Misunderstood » Mon Aug 06, 2007 2:37 pm

Hello Kavski. My GP didn't have a clue either. But when I was diagnosed with HS by a dermatologist,he said "I told you it was that" !!!! Was like it over PCOS too. He's very nice but I use my GP as a 'means to an end'. They're the first point of call to go on to see someone who can help you. It's seems very rare, these days,for a GP to treat you for most things without referring you on. PCOS certainly seems to be a complaint that many Verity users have trouble getting their doctors to treat or even diagnose. My 17 year old daughter was diagnosed with it in April and all the GP(same one as mine) said to her was "It is quite a common condition,let's see if it settles down." I think she'll need to see a specialist in the future. But our GP sees her symptoms as minor. I wish you well.
Misunderstood
 
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Postby Darksilence » Thu Nov 15, 2007 3:58 pm

OMGs!

i get the boils/spots on the inside of my thighs too! i just thought they were because my legs rub together when i walk cus im so big! :oops: i also get little areas of skin which rise up and then become loose and darken in color. i will maybe mention this to my doc. thank you all so much for being brave enough to share. i know i wouldn't have been brave enough to say it first! :cry:

i'm learning so much from being part of this board!. thanks again!. :D
Darksilence
 
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Postby natty123 » Wed Dec 05, 2007 4:58 pm

i used to get boils between my legs and under my arms, but they went when i went onto metformin endo said it was my sugars.
natty123
 

Postby Lozzarella » Sun Jan 06, 2008 1:46 pm

Hi all! I also suffered before with spots on the groin area and also painful swollen glands under my arms. This would come and go, but i was always quite worried when it appeared. I saw a nutritionist in September who tested me for food in tolerances as well as many other things, she found out that my lymph system was seriously full of toxins and she said this was probably why i had these swollen glands. There were so many toxins in my system because i have alot of intolerances which have built up during my whole life. Now i cut out wheat, dairy, sugar (of course!) caffeine and I've cut down alot on alcohol. These swelling have not appeared now for over 3 months. Ive been re-tested recently and my toxin level has come right down. I just think that women with PCOS will have alot of intolerances to certain food because of our funny hormones!! And this can cause our glands to fill with toxins. I can't say it applies to everyone but it certainly helped with mine!
Lozzarella
 

Postby emma05 » Sat Jan 12, 2008 4:08 pm

emma05
 
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