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newbie advice on IR please

PostPosted: Wed Mar 20, 2013 3:41 am
by clairelou123
Hey everyone!!

I was diagnosed with PCOS just before christmas. I was basically told this is the condition you've got but there's nothing we can do for you anyway as your not trying to concieve, so they discharged me.

Before diagnosis and before PCOS was even suspected. I went to my GP with inability to concentrate, constant fatigue, nausea, terrible mood swings. His answer to these problems was to stick me on anti-depressants without even doing any blood work. I did not take them and just carried on. Since then i have been diagnosed with PCOS. After doing lots of research i am very concerned about the possibility of insulin resistance and developing diabetes. This was not even mentioned to me. Over the last 12 months i must of gained around 1stone 7lb. All seems to be around my mid section and i have terrible cravings for sugar. Sometimes making me hysterical and soooo angry!!

What does everyone think? I am considering going back to my GP. Maybe try to see a different GP.
Is there anything i can be doing to help myself?
Everything i can find on the internet is suggesting cutting out all carbs and sugars. The thought of that terrifies me!!
Please help me, i am in such a rut at the moment :(


Re: newbie advice on IR please

PostPosted: Wed Mar 20, 2013 7:39 am
by Hols969
We are at an increased risk of IR and diabetes so just really if you can keep your weight closer to normal then this does reduce the risk. You do need to cut out the white carbs as they are not good from an IR point of view (which you may not have) so try and move slowly over to the brown stuff, also sugar is a no no as well as it makes us get highs and lows so you do need to tackle it, take one step at a time. I still eat quite a lot of fruit but use sweetner for everything else.

The combined contraceptive pill can help control your symptoms (and can help with losing weight as well), yasmin is a good one and it is what endocrinologists who are pcos specialists recommend. If you do want a family in the future then your body is less pcos when you come off the pill so increases the chances of conceiving quicker.

We do have a number of 'risks' that come with pcos inc diabetes and heart disease and the way I look at it is that you have been told and can do things to reduce that risk like exercise, good diet etc etc. Im 43 and probably much closer the the risk of IR and diabetes as I get older but you know what, it may not happen to me, if I keep my diet pretty good generally then Im sure this will help.

Oh as for the sugar craving... it takes about 3 weeks to kick it, its tough but actually I rarely crave sugar now (I did this while on the Norah Lane diet), as I used to crave carbs massively as well but rarely have many carbs, mainly potato if I do, so it is possible to kick the 'habit' but take little steps not massive ones otherwise you will go mad!!

Ask to be referred to an endocrinologist as they will be able to advise further as GP's all too often tell people to go away unless they want a family and actually there are other things that should be looked into as well (you must have 4 period a year which they never seem to let ladies know, so that your uterus remains healthy). You could ask for an IR test, their are two sorts, one is a blood test (no food from 8pm the night before) and then the other test is as the first but then you get given a sugary drink and another blood test an hour later - this is the one you should have as this shows how your body deals with the sugar (often they only do the initial test which frequently comes back normal).

Good luck and let us know how it goes.

Re: newbie advice on IR please

PostPosted: Wed Mar 20, 2013 8:42 am
by clairelou123
Ahh thanks for the reply. I'm already taking dianette, this was for acne which has now cleared up. My BMI is on the higher side of normal and to look at me in the right kinda clothes I look slim but I just have this massive belly!! I'm dreading going back to the GP he is so old school! Makes me feel like a right idiot!

Re: newbie advice on IR please

PostPosted: Wed Mar 20, 2013 9:37 am
by Hols969
I'm the same, all around the middle. I'm sure I will never really get a good waist!! Maybe see another gp if u feel your one isn't quite with it!!!

Re: newbie advice on IR please

PostPosted: Sun Apr 07, 2013 11:25 am
by Wingbatty
I tried to cut out all carbs (Paleo) and it was a disaster. My doctor now is really, really good (endocrinologist) and he explained that the brain needs 120 mg of glucose every day to operate, period - and other systems of your body need a bit, too - maybe 150 mg minimum in total. If you don't supply this in carbs, your body will go through the difficult process of changing protein or fat into sugar for your brain. However - when it does this, it produces quick-acting sugar, just like if you had eaten white bread or a donut. Also, it produces some amount, quickly uses a little bit of it, then stores the rest - in the liver & around your midsection.

I have seen a HUGE difference in my mental & emotional state from eating every 2.5-3 hours, whole grains & veg, low-fat. On days when I don't follow this, I suffer. Everyone around me suffers.

I was put on anti-depressants several years ago by a doctor who said, "I think something is wrong with your hormones but you're too young for us to fool around with those". No check for PCOS was done and I had no idea. Now I'm going off those medications and finding that what I eat (and WHEN) makes more difference than anything.

best of luck -

Re: newbie advice on IR please

PostPosted: Sun May 11, 2014 9:35 pm
by Calesmill
Hi there, I know this can be scary, but there are ways of helping yourself feel better.
I sometimes feel out of control with food, i have given up gluten, which means I eat no bread, biscuits, cake, white pasta or breakfast cerals with wheat and other grains in.

AHHH I can hear you cry. but .. . it has had a huge affect on me, my health is better, i lost two stone initially, and i feel like i am in control at last.

have a go, get through the sugar craving and you will feel better, I promise

Good Luck

Re: newbie advice on IR please

PostPosted: Thu Jul 10, 2014 11:52 am
by apricot
Hi All,
Sorry to jump on this post but, I am interested to know...
I am not over average BMI, would cutting sugars and white carbs still potentially benefit my PCOS?
I have had "blood tests" done by GP which show as normal, but I dont know what they tested for, should i be asking specifically for IR test?
Also I am thinking of going to see a specialist privately. Is Endocrinology the first place to go, or Gynaecology? I was in touch with a Gyn recently who told me he would be best first port of call but on here the consensus seems to be Endo.
I am so confused!

Re: newbie advice on IR please

PostPosted: Thu Jul 10, 2014 12:48 pm
by Hols969
Cutting out sugar and white carbs can reduce the pcos symptoms. They no longer do IR tests so it is a standard blood test (fasting) and show it over a 3 month period. I would see an endo if it is pcos related as it is a hormone imbalance rather than a 'fanny/ovary' issue.

Re: newbie advice on IR please

PostPosted: Fri Jul 11, 2014 7:55 am
by apricot
Thanks Hols - it is so hard to get a straight answer out of anybody about this in the healthcare world. I am going to find out exactly what the blood test was that my GP did recently - they tell me it just came back as "normal"...I presumed this was hormone levels not diabetes check, but I need to be clear so I know what to ask for next. If it was hormones and it came back normal...then what is causing my PCOS I wonder :-/

**munches banana and looks mildly confused**

Re: newbie advice on IR please

PostPosted: Fri Jul 11, 2014 8:36 am
by Hols969
It's not uncommon for blood tests to come back as normal. Have you been scanned as well?

Re: newbie advice on IR please

PostPosted: Fri Jul 11, 2014 1:44 pm
by apricot
I was scanned (pelvic and transvaginal) years ago which is what prompted the diagnosis and this showed "ovaries like bunches of grapes" so there is no doubt about it they are polycystic. Bloods were taken then and I was told they were normal and then again recently they have come back as normal. I have today got a copy of the blood results from the GP after requesting it because I wanted to know in more detail what was done.
Here is what the results were:

TSH - 2
LG - 10.4
FSH - 4.5
HbA1C - 5.2/33mmol/mol

These were taken at end of April, I have not had a period since November 2013 which is the longest I have ever gone, so I don't know if that has any impact on the above results, i guess so?
I know that they are all within normal range - but my understanding is that the FSH is probably a little lower than should be, which is a sign of not ovulating apparently. BUt then maybe it is just a sign of not ovulating at that specific time rather than not ovulating in general.

Do they usually take tests before/after periods, at certain times etc to monitor changes in levels? This would be hard with me as I menstruate so infrequently.

I've also just this minute posted a new subject in the IR & Diabetes section about IR queries I have, which I would be interested in gaining your opinions on Hols, if you do get a mo :-) Thanks for your help x