Insulin Resistance

Why we all seem to carry it all around the waist...

Moderators: Northfifer, Sammi, Hols969, DawnyB, purplestar, loachy, Mrs Wilko, Lutzomyia, thebuzz

Postby TinaD » Sat May 02, 2009 10:41 pm

Thanks for your reply babygem - good news! think I've found a specialist, in my area to! Dr Tara Kearney - she is a consultant Diabetologist & Endocrinologist with a clinical interest in PCOS, at the Alexandra hospital, Cheadle, Cheshire.

Also the day after I saw my gp who wasn't very supportive, the surgery phoned to say that i could have a letter of referal from the gp if I wanted it - wonder if gp felt quilty? I've got an appt 20th May, so keep your fingers crossed - might actually make some headway.

Hope you ok, take care - Tina

Has anyone heard of/ or seen Dr Tara kearney?
TinaD
 
Posts: 107
Joined: Thu Mar 12, 2009 12:05 pm
Location: Cheshire

Postby babygem » Sat May 02, 2009 10:57 pm

Hi Tina - great news you've found a suitable specialist amd also that your GP is being more supportive.

Good luck with the appointment on the 20th - let us know how you get on - meanwhile hope you are enjoying the sunshine!
babygem
 
Posts: 323
Joined: Tue Apr 04, 2006 8:00 am
Location: Essex

Postby TinaD » Sat May 02, 2009 11:01 pm

Thanks Babygem, I'll let you know how i get on. Hope the sun has been shining for you to - have a good weekend.

Tina x
TinaD
 
Posts: 107
Joined: Thu Mar 12, 2009 12:05 pm
Location: Cheshire

Postby Snaffles » Mon May 04, 2009 6:27 pm

Hi Tina,

Sorry to hear about all your problems with your GP. Why do they most think we're all neurotic hypochondriacs. Mine (the nice one) has suggested counselling as I said my feet were like those of a chimp- they are very hairy! Think she thinks I've got some body issues which is correct in a way as I have, but I suspect I wouldn't if my hormones weren't all over the shop causing chimp feet!!

Good one you for fighting for an endo appt- not that you should have to fight. I hope they get you sorted out.

For the record, I was diagnosed with PCOS about 10 years ago. Had all the classic symptoms inc. cysts. Had another scan about 3 years ago and had no cycts. Had another scan 3 months ago and had loads again. There seems to be quite a few people on here who ahve had similar experiances of magical disappearing cysts. Maybe worth pointing that out.

Sarah
Snaffles
 
Posts: 37
Joined: Fri Dec 19, 2008 7:47 pm

Postby TinaD » Mon May 04, 2009 9:04 pm

Snaffles - you're right. My gynae said i had one or two cysts - so where have they gone!!! I suppose they could have shrunk or the person doing the ultrasound could have missed them! Funny hey!
TinaD
 
Posts: 107
Joined: Thu Mar 12, 2009 12:05 pm
Location: Cheshire

Postby Lamb » Thu May 21, 2009 7:14 pm

Be good to hear how you got on TinaD :) Fingers crossed :)
***************************
Diagnosed PCOS - Apr 09
Supplements: Omega 3 Oils, multivitamin /mineral
Holistic Support: Indian Herbs
BMI: TBC Weight: TBC
Mummy to baby Harrison born 13-1-2012!
*******STAY POSITIVE*******
**************************
Lamb
 
Posts: 279
Joined: Wed Apr 08, 2009 3:30 pm
Location: Brighton

Postby Annoldie » Thu May 21, 2009 8:29 pm

Hi Tina. How did it go to-day?
Annoldie
 
Posts: 852
Joined: Mon Sep 12, 2005 11:45 am
Location: South Lanarkshire

Postby TinaD » Sun May 24, 2009 9:22 pm

Hi Ladies, thanks for asking how i got on with specialist. Great so far, luckily she was really nice and approachable and wants me to have some tests done. She said my worst symptoms do sound like IR symptoms and if the tests confirm this will perscribe metformin.

Ann at last i can get the one you suggested (thanks again) the GTT test, also a 2 x 24hr collection of urine to do a urine free cortisol test, a 9am testosterone test with a free androgen index and prolactin test.

Fortunately i have got some bupa cover but only for £500 and Dr Kearneys initial consultation was a staggering £260! She wants to see me again in 4 weeks (£130) and i've got to get the tests done - i'm going to ask gp if they can do some for me (fingers & toes crossed).

Also a bit worried that ive seen a thread on the discussion board warning about bupa re: not covering PCOS as it is deemed to be a chronic illness. Reading the small print in my cover it does say bupa wont cover chronic illnesses. But until they say anything to me i'll carry on (again fingers crossed). Worst case senario - if Dr Kearney can help the IR symptoms, i'll find the money from somewhere.

Also a bit worried about the possibility of all the tests being normal and what i would do then. But i'll try to not think that far ahead and take one step at a time. I've waited 30 years so whats a few weeks hey.

If anyone can think of anything that i should be asking the specialist - please let me know.

Thanks again, will keep you posted. Hope you are all ok.
Tina
TinaD
 
Posts: 107
Joined: Thu Mar 12, 2009 12:05 pm
Location: Cheshire

Postby babygem » Mon May 25, 2009 6:15 am

All sounds very positive Tina. Glad you are getting what you need at last.

Sadly it does seem that unless you are extremely fortunate you end up having to opt for private care. I think the consultation fees you are being charged are probably about the average.

Is your BUPA cover paid for by your employer? If so perhaps they might be able to help re the £500 outpatient limit? I have been in a similar situation.

Hope your GP is obliging and you can get some of the tests done via the NHS at least.
babygem
 
Posts: 323
Joined: Tue Apr 04, 2006 8:00 am
Location: Essex

Postby Annoldie » Mon May 25, 2009 9:53 am

Hi Tina. Thanks for letting us know how you got on. As babygem says, it does all sound very possitive. I'm sure your GP should be able to organize some if not all of the tests for you. Have you got your next appointment booked? Ann
Annoldie
 
Posts: 852
Joined: Mon Sep 12, 2005 11:45 am
Location: South Lanarkshire

Postby TinaD » Mon May 25, 2009 8:50 pm

Thanks for your replies ladies.

babygem - yes its frightening that the fees are so much isn't it - wish i was earning that much! OH and i get the BUPA cover through his job, not mine - but i will make enquiries about whether we could increase our cover.

Ann - Next seeing Dr Kearney (specialist) 17th June. Also waiting for the letter from her initial consultation to arrive at drs, ringing them tomorrow. Only problem is, i'm not going back to the dr that wasn't very helpful, but did actually refer me. So i'll just have to try one of the other drs, so fingers crossed they will be supportive of PCOS and doing some of the tests.

I'm also going to ask whether i could be referred to dr Kearney at the nhs hospital she practices at, to continue seeing her on the nhs - don't know if anyone has any thoughts on this and whether it would be possible. Should image it will be like everything else an uphill battle!
TinaD
 
Posts: 107
Joined: Thu Mar 12, 2009 12:05 pm
Location: Cheshire

Postby Annoldie » Wed May 27, 2009 2:01 pm

You should be able to go anywhere on the nhs if you are prepared to travel and the consultant is prepared to see you. I think there can be problems if you have a condition that may call for emergency admission - but thats not an issue for you. Hope your GP plays ball, it could save you a lot of money. I think Dr Kearney has clinics at St Marys and Hope hospitals Manchester, but not sure. Ann
Annoldie
 
Posts: 852
Joined: Mon Sep 12, 2005 11:45 am
Location: South Lanarkshire

Postby TinaD » Wed May 27, 2009 10:03 pm

Hi Ann - good & bad news - my gp phoned today to say he is happy for me to have the tests, but after he requested them at our local hospital was told that BUPA will have to be billed for them as our local hospital is a foundation trust? Sadly this will exceed the limit i'm covered for as they will cost total of £222. So have opted to get them done with Dr Kearney who said that if my local hosp wont pay, she can do them at Hope hospital privately. Booked for mon 8th june.

You've got me thinking - i thought we can be treated anywhere now that we choose on nhs? wonder why local hospital want to charge for tests if my gp has requested them? wonder if its because i've initially seen specialist privately.

As per usual, nothing is simply and sounds like i would have to fight to get them done on nhs. Don't know if i've got much fight left - it would just be easier to get tests done at Hope hospital, although it will be a struggle to save the extra money it will cost. But on a positive i might get some answers in a few days - hopefully.

Babygem - checked today - our BUPA insurance is a corporate one with the basic cover. sadly we have to pay first £100, so cover is actually only £400. That will cover Dr Kearneys 2 x consultaions, so will have to pay for tests. 1 step forward & 2 steps back hey!

Hope things are ok for you ladies.
TinaD
 
Posts: 107
Joined: Thu Mar 12, 2009 12:05 pm
Location: Cheshire

Postby babygem » Thu May 28, 2009 8:25 am

Not sure what difference it should make whether a hospital is a foundation trust or not - not even sure exactly what this means in a practical sense? Your GP obviously didn't forsee it was going to be a problem. I suppose you could ask for some clarification, especially as blood tests etc are likely to be ongoing (although hopefully cheaper after your initial batch of tests).

I also thought that there was some change in the law last year concerning combining NHS and private treatment, as a result of problems cancer patients were having when they were being treated by the NHS but opted to pay privately for certain drugs not funded by the NHS?

Or it could be something to do with the type of tests your endo has requested? This happened to a friend of mine who's private endo requested a specific thyroid test that her GP agreed but her local hospital refused to do. I found it quite worrying to think that certain things like a particular, simple blood test are theoretically available, but not funded by the NHS when you need it. If this is the case perhaps the hospital would do some, if not all, the tests and you could just pay privately for the remaining one(s)? Might sound like hassle but once you know where you are with it all you would know what to do in the future?

Also keep in mind that the £500/£400 BUPA limit is usually per year, so if you are careful you might be able to claim for at least some future consultations etc each year.

As for transferring to see your endo as an NHS patient - why not if she is agreeable. Perhaps you could see her privately for your first few consultaions, tests etc and then hopefully once things are improving/more settled you could transfer to her NHS clinic just for check ups and it wouldn't matter so much if you didn't get to see her at every appointment but saw one of her colleagues instead?
babygem
 
Posts: 323
Joined: Tue Apr 04, 2006 8:00 am
Location: Essex

Postby TinaD » Mon Jun 08, 2009 6:44 pm

Hi ladies - been for the tests today that dr kearney requested. I was at the hospital for over 5 hrs. The main one was the OGTT test where they took a baseline blood sample, had to drink the glucose drink and then had my bloods taken every half hour (my poor little vein!)

I go back for the follow up consultation on June 17th and will let you know how I got on. I had one of my funny turns when I was at hosp, wonder if thats because i had fasted. It was when everyone one else was tucking into their lunch!

Also my skin isn't good at mo, really oily and spotty, brown patches going worse, despite sunblock and loads of facial hair. So hopefully if it is high testosterone/hormone levels causing this, they will show up on the tests. My periods are all over the place aswell!

On a good note my low GL diet is going well and i'm still shrinking in size and weight. I've now lost about one & a half stone. Funny though, as i'm losing weight my skin etc was improving - so wonder if it is the worrying about the tests today set everything off again?

Hope you are all ok, love to hear how you are all getting on - regards
Tina
TinaD
 
Posts: 107
Joined: Thu Mar 12, 2009 12:05 pm
Location: Cheshire

PreviousNext

Return to Insulin Resistance and Diabetes

Who is online

Users browsing this forum: No registered users and 1 guest

cron