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Metabolic syndrome - any recommendations?

PostPosted: Mon May 12, 2008 9:33 pm
by Miffy
I was told by the hospital today that despite being diagnosed 6 years ago I do not have PCOS. They haven't got a clue what I do have just yet because there is too much going on for them to get a clear picture but PCOS it isn't.

The one thing that did show up from my blood tests was insulin resistance and the consultant has told me he thinks I probably have metabolic hormone syndrome? I've tried doing a search on google tonight but most of the sites are just leaving me totally confused as they are at too scientific a level.

Does anyone have any recommendations of books I can read or websites to visit to get myself educated in what it is, symptoms, treatment options etc. I've got loads of good books on PCOS that are written at a level I can understand easily but I have no idea what books will do the same for metabolic syndrome.

Any help gratefully received.

PostPosted: Thu May 22, 2008 5:36 am
by babygem
Jennie Brand-Miller's book on PCOS is one of my favourites, and I see on Amazon that she has also written one about metabolic syndrome, which might be worth looking at.

Might also be worth taking a look at the website and subscribing to the newsletter.

Seems strange how your dr is now so certain that you don't have PCOS, even though you were diagnosed with it previously, especially as the symptoms of metabolic syndrome (insulin resistance, weight problems, high cholesterol and so on) can also be part of the PCO syndrome??

PostPosted: Thu May 22, 2008 1:10 pm
by Miffy
its because my blood tests all come back normal and also my scan doesn't show an above average number of cysts. I have never had irratic periods either - absolutely regular as clockwork. Its part of why I pushed to see a different specialist this time because I wasn't convinced they had it right the last 6 years but couldn't get anyone to listen to me. I was diagnosed before based on one scan only - every scan since has said differently and the blood tests have always come back normal but because of the one scan showing cysts the previous consultant wouldn't accept it might be wrong.

Now I'm seeing a specialist Endo and he fills me with a lot more confidence that he knows what he's doing.

Thanks for the advice - I'll have a look for the Jennie Brand-Miller book.

PostPosted: Thu May 22, 2008 6:25 pm
by babygem
I agree seeing an endocrinologist is the way to go - I have been seeing one for a couple of years, but wish I had been referred to one years ago.

It is only since being referred that I have managed to start to get to the bottom of what is going on, and do something about it. PCOS and related syndromes are complex conditions. GPs have very limited knowledge about all of this, and in my experience can do more harm than good! They just don't have the expertise but unfortunately often seem reluctant to admit it and so reluctant to refer.

Hope you find some answers soon.

You took the workds right out of my mouth!

PostPosted: Sat May 24, 2008 6:46 am
by AngelosMom

You took the words right out of my mouth! I have been struggling with my GP for YEARS to take me seriously! And get this...last year when my blood pressure was 160/100, my cholesterol was 280, my weight was 175 and I have skin tags, central obesity/insulin resistance and HUGE male pattern hair growth she was like, "You haven't been diagnosed so...I think it is all just a coincidence that you have all of those things." UMM? PCOS isn't something you can go to the store and buy a test for, like pregnancy or isn''t black and white and here I have FIVE OUT OF FIVE of the symptoms aside from never having had a scan done. Last week I finally badgered enough to get a referral to an endo and begged forblood work and told them exactly what I wanted tested since she never tested my androgens or testosterone and HERSELF has put me on an anti-androgen due to my facial hair. Anyway, she called me and ACTUALLY SAID, "I don't feel I am qualified to order the hormone tests, if they come back elevated, I won't know what to do with that information." UMM?

I am switching as we speak to both an Osteopathic Doctor and have referrals to a local Endo and an Endo at a nearby medical college hospital. I am hoping someone can get to the bottom of things.

As an aside, I am on Lexapro for anxiety and low-carb diets do not work for most people on SSRI's so when I try to go off of it I basically have an emotional that's on top of the ignoramous I have for a GP!

Vanessa :evil:

PostPosted: Sat May 24, 2008 7:26 am
by babygem
It sounds as though you have been having a really tough time Vanessa, but hang on in there - you are now getting the referrals you need at last.

Hopefully everything will start to come together now and you will feel that you are making some progress at last, rather than just battling with all of these various symptoms and getting nowhere. Thsi is how things have been for me and I hope the same happens for you.

I was interested to see what you said about SSRIs and low carb diets. It was when I was taking Prozac for 6 years that I started to really pile weight on, I wonder if there is any connection?? Have you tried the low GI diet? This is what has helped me to lose almost 5 stones in 2 years, together with some moderate exercise and Metformin.